Thursday, August 8, 2013

Awareness Video (Revised): What is ME/CFS?

A few years ago, I created a short, informational video in the hopes of increasing awareness about ME -- the extremely serious and debilitating disease from which I suffer.  Due to my health, it had taken me over four months to complete. 

However, since that time, some of the research changed, and the video therefore became outdated.  Over the course of several months, I have therefore slowly worked on revisions -- updating information and adding more patient photos.  You can find the new version below.  Please feel free to post and share widely in order for it to reach a broader audience.

I should note that the majority of patients featured in this video are on the more severe end of the spectrum.  They are shown here because they are otherwise not often seen.  Bedridden and/or housebound, these patients are typically unheard, unnoticed and forgotten.

My goal is to help raise awareness about the harsh realities of this illness and the urgent need for increased funding.  With more funds for research, there will be more answers, and with answers there is hope.

Thank you for watching, and much thanks to all those who kindly allowed me to use their photos and to briefly share their story.


Note:   In using the term ME/CFS for the purposes of this video, CFS refers to the Canadian Consensus Criteria and the International Consensus Criteria.  There is some controversy about this issue.  For more on the importance of definitions, please refer to David Tuller's excellent article "Chronic Fatigue Syndrome and the CDC: A Long, Tangled, Tale."


This video was originally uploaded on August 7, 2013 and re-uploaded on August 31, 2013 in order to make a few additional small edits.  Thank you for your patience.

9 comments:

  1. OMG I am sobbing. First I loose my precious sister to this disease, I get it and now my young son is very close to diagnosis.

    Please Lord help us....

    Laurel, I love you sweetheart...I love you so very, very much.

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  2. This is very well done Laurel, and also sad to see what this illness does at it's worst. I also like that you point out how it's not just about us, but those in the future that do not have to be this sick and alone/forgotten if there were better research, treatments.

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  3. Excellent video. Thank you so much for making it.

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  4. Thank you Laurel. Well done Video. I am so sad about this circumstances which come along with this illness.
    Thank's for raising awareness.
    Best regards from germany

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  5. Thanks for the kind words and support!

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  6. Hey I have a quick question about your blog, could you email me when you have a chance? Thanks! -Cam

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    1. Hi, Cam. Thanks for visiting my blog. I sent you a PM. :)

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  7. How are you doing Laurel? I have just shared your video on my facebook page. Very good info and put together. ♥

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    1. Thank you, Lori! I"m about the same, but thank you for asking. I haven't posted on here in ages and really need to try to do so soon! Hope you are well. xo

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