tag:blogger.com,1999:blog-1168792825239178484.post3904871900373920774..comments2023-05-16T17:11:21.511-07:00Comments on Dreams at Stake: What I Miss MostLaurelhttp://www.blogger.com/profile/01688914443102913569noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-1168792825239178484.post-50236845723762537792009-12-06T14:19:50.145-08:002009-12-06T14:19:50.145-08:00Thanks for your comments, Pris! I am aware of your...Thanks for your comments, Pris! I am aware of your name and your poetry, and am honored to have you visit my blog. :)<br /><br />Yes, I have been unable to speak more than a few words above a whisper since about 2001. You can see my full story at my original blog entry. Glad to know that has improved for you! Hope it continues to do so. Best of wishes to you!Laurelhttps://www.blogger.com/profile/01688914443102913569noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-17248654857737093762009-12-05T11:51:18.444-08:002009-12-05T11:51:18.444-08:00I can SO relate and am glad you shared. Do you hav...I can SO relate and am glad you shared. Do you have voice loss, too? I lost mine completely from 1992 until around 1998, then could speak for only a limited time until 2008. I can talk more now but always have to be careful and not overdo or I lose it again.<br /><br />I have links to some great me/cfs folk on my blog and plan to add yours!Prishttps://www.blogger.com/profile/03970753027686923295noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-69334639021493323922009-11-19T18:28:53.308-08:002009-11-19T18:28:53.308-08:00Laurel, Your words are eloquent, beautiful and enc...Laurel, Your words are eloquent, beautiful and encompass all that I miss as well. Thank you for your honesty.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-77474376881565806872009-11-03T13:17:53.733-08:002009-11-03T13:17:53.733-08:00This post is so honest and real. It speaks for so ...This post is so honest and real. It speaks for so many...bless you Laurel.Reneehttps://www.blogger.com/profile/07089685282700680525noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-77818851234277014212009-10-27T08:30:00.238-07:002009-10-27T08:30:00.238-07:00Hi Laurel. :)
Well said. Every part of it was nic...Hi Laurel. :)<br /><br />Well said. Every part of it was nicely done. I very much share your wishes for the future and I can feel the days passing in which they may have time to occur. <br /><br />Hugs, <br />LisaLisahttp://sundogtales.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-9754418181364810872009-10-27T08:15:51.045-07:002009-10-27T08:15:51.045-07:00Thanks for all the kind and thoughtful comments, a...Thanks for all the kind and thoughtful comments, as always. Means so much!Laurelhttps://www.blogger.com/profile/01688914443102913569noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-42160399132334516732009-10-27T04:59:07.214-07:002009-10-27T04:59:07.214-07:00Thank you, Laurel, for having the courage to share...Thank you, Laurel, for having the courage to share this wonderfully beautiful and vulnerable post. I relate to so much of it, and it brought tears to my eyes. It also reminded me that I am one of the lucky ones, and have a lot I need to remember to be grateful for. Bless you, Laurel.MFSnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-36531620073719130552009-10-26T09:16:05.201-07:002009-10-26T09:16:05.201-07:00Potential, missed opportunities, and so many wants...Potential, missed opportunities, and so many <i>wants</i>: I understand it all to well, unfortunately. <br /><br />This is a wonderful, beautifully vulnerable post, and I just wanted you to know that I get it, and I wish for things I can't have too.Never That Easyhttps://www.blogger.com/profile/04008749218695113192noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-50273185111126872642009-10-26T02:40:14.414-07:002009-10-26T02:40:14.414-07:00This post is so beautiful and there are only a ver...This post is so beautiful and there are only a very few things that I can't empathise with, unfortunately.<br /><br />And what nocturnespider said about not letting ourselves think about it resonates with me too. Most of the time I don't let myself think about this stuff because it's so soul destroying to do so - to think of what I'd do if I were well hurts so fiercely I think I might drown in the emotions, and it's hard and energy-sucking to get out. So most of the time I just don't go there.<br /><br />I let myself think of what I'd do if I were 1 step healthier, 2 steps healthier, perhaps 3 ... but not the thousand steps it'd take to be well again. That's too dangerous.<br /><br />Thanks for posting this - I shared it with Facebook friends because your writing tells them so much about <em>me</em> too.<br /><br />Love & hugs,<br />rAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-31715439749784664642009-10-25T19:15:11.856-07:002009-10-25T19:15:11.856-07:00"I miss having a body that matches the energy..."I miss having a body that matches the energy and vitality of my soul."<br /><br />Thank you for having the courage to post this... We spend so much time dedicating our thoughts to the positive, to the things we can still do, to the people who are still there, that it can be viscious when we "slip up" and remember that underneath all the strength, there is still hurt, there is still loss. And yes, the next day, or maybe the day after, we'll be "ourselves" again, focusing on what we can do with each day... People don't realize that we are this way--appearing so strong and optimistic--because if we weren't, we'd completely fall apart. And every time we dare to remember what we've lost, whether it past or future, we're risking so much more than just a couple hours of nostalgia. It's remembering that life as we knew it, and the life everyone said we were supposed to have, was taken from us...and then having to bounce right back, because if we don't, it's like going through it all over again, and causes a crash that steals more of our vitality. Truly, truly not for the faint of heart.nocturnespiderhttps://www.blogger.com/profile/16658418398909611124noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-16905909379015239682009-10-25T11:18:16.111-07:002009-10-25T11:18:16.111-07:00A heart rending post but so true.
Although I was ...A heart rending post but so true.<br /><br />Although I was much older when I started with Lyme Disease and not as sick as you I can understand how you feel.<br /><br />Now I am well again although still need antibiotics to maintain my health I can enjoy so much again. Little things throughout the day remind me how lucky I am to have recovered. <br /><br />Especially so with all the controversy that makes it so difficult for people with Lyme to be diagnosed and adequately treated.<br /><br />I did not have all your other complex problems and never knew that endless fatigue that so many with ME/CFS suffer. <br /><br />I was lucky and will leave no stone unturned to get recognition for what is going wrong with our health care systems that leave so many undiagnosed and inadequately treated.<br /><br />I await with interest because I feel sure that for some the XMRV retrovirus may well be a co infection with Lyme especially as it comes from the mouse world.<br /><br />I hope you soon recover from your crash and thank you for visiting my blog.Joannehttps://www.blogger.com/profile/12905137222286141548noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-21375746114630880592009-10-25T11:13:38.782-07:002009-10-25T11:13:38.782-07:00this is beautiful and unfortunately I understand t...this is beautiful and unfortunately I understand too much of it.<br /><br />I don't think it's too depressing or revealing, but I certainly know what it's like to feel vulnerable about sharing this sort of stuff. Especially with people who cannot begin to conceive of what it means to lose all of this.<br /><br />I got to live about 15 more years of my life able bodied than you did. But now I'm in almost the same condition, though I can still get up for very brief amounts of time (bathroom trips, mostly)<br /><br />Dear woman, you show me that it is possible to continue and still have purpose regardless of our condition.<br /><br />much love to you today.monicanoreply@blogger.com