tag:blogger.com,1999:blog-1168792825239178484.post4940168377018026852..comments2023-05-16T17:11:21.511-07:00Comments on Dreams at Stake: Testimony: A Glimpse into Severe ME/CFSLaurelhttp://www.blogger.com/profile/01688914443102913569noreply@blogger.comBlogger30125tag:blogger.com,1999:blog-1168792825239178484.post-81498719827130952322013-02-13T15:34:29.191-08:002013-02-13T15:34:29.191-08:00Hola Laurel.Te quiero transmitir mi mayor fuerza p...Hola Laurel.Te quiero transmitir mi mayor fuerza para ti.He utilizado tu imagen y tu testimonio para pedir el apoyo de cuantas mas firmas mejor a fin de poder pedir al Gobierno de España que la Fibromialgia y al Fatiga crónica, las considere invalidantes como la ORGANIZACION MUNDIAL DE LA SALUD. En mi país aún no está totalmente reconocida.<br />Yo la sufro y estoy luchando por conseguir apoyos y llegar hasta ellos para cambiar la Ley de Sanidad.<br />Espero no te moleste que te haya utilizado para que la gente conozca la enfermedad. Y pido tu apoyo en tu página para mi petición.<br />Ojalá algún día podamos llegar a conocernos.GRACIAS.<br />Fatima Diaz-Islas Canarias-España.Anonymoushttps://www.blogger.com/profile/08559264757415538155noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-8319138379368096682011-11-07T22:51:01.228-08:002011-11-07T22:51:01.228-08:00Thank you Laurel, for doing this. "WE" K...Thank you Laurel, for doing this. "WE" Know what u must of had to go thu to complete this,<br />Huge...Blessing's to you...& " May the Angels bring you 'more'!...joy, to your life "<br />Great Job !! marieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-46896043858736727802011-11-06T14:40:01.376-08:002011-11-06T14:40:01.376-08:00Very touching Laurel, thank you taking the time to...Very touching Laurel, thank you taking the time to post these stories.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-51658641527660488602011-10-27T02:23:09.323-07:002011-10-27T02:23:09.323-07:00Hi Laurel,
thanks for taking the time & energy...Hi Laurel,<br />thanks for taking the time & energy to share these stories. Lets hope they are really heard!Alisonhttp://www.chronicmuse.comnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-46181283720924650792011-10-26T14:42:56.603-07:002011-10-26T14:42:56.603-07:00Just caught up with this Laurel - thank you so muc...Just caught up with this Laurel - thank you so much for using your limited energy to keep fighting for everyone with ME.Juliethttps://www.blogger.com/profile/14861589817615423847noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-83169045182853347632011-10-24T04:23:37.080-07:002011-10-24T04:23:37.080-07:00thank you for that.. it must have taken a great ef...thank you for that.. it must have taken a great effort to write and i am passing it on in the hope that more people read itAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-36420708037624042412011-10-23T10:14:51.999-07:002011-10-23T10:14:51.999-07:00You truly ARE my hero, Laurel.You truly ARE my hero, Laurel.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-30555519605752743962011-10-23T08:06:36.186-07:002011-10-23T08:06:36.186-07:00Yes, beautifully done, thank you so much for the w...Yes, beautifully done, thank you so much for the work did. These stories need to be known. <br /><br />Not sure if this is the right place to do this but the ME documentary "Voices from the Shadows", which tells the stories of 5 ME patients, is available to watch free online until Oct. 30th in the US and Canada. It is at the bottom of the 4th page here or type the name into the search box. <br />http://mubi.com/festivals/mill-valley<br /><br />Getting these stories out into the public is so important!rielynnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-84315513968625614882011-10-23T02:46:07.199-07:002011-10-23T02:46:07.199-07:00Thank you SO MUCH for doing this for us all, Laure...Thank you SO MUCH for doing this for us all, Laurel- I am also afflicted with severe ME and would gladly contribute to any testimony now or in the future- I don't get on the computer regularly so I haven't investigated this kind of thing but I would love to contribute, as there i s a desperate need for us to be heard! Thanks again and best wishes for healing!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-12440673200101397652011-10-23T02:04:55.379-07:002011-10-23T02:04:55.379-07:00grazie delle testimonianzegrazie delle testimonianzepatrizia giorginoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-1179588211301203862011-10-22T12:52:37.931-07:002011-10-22T12:52:37.931-07:00Thank you for being such an inspiration and a wond...Thank you for being such an inspiration and a wonderful human being to share a planet with :)<br /><br />That's is wonderfully said by Nina and I totally agree. I shared your story in the Netherlands. The situation is not much different here.<br /><br />I wish you alle the best dear Laurel!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-87087753793524556132011-10-22T05:16:25.758-07:002011-10-22T05:16:25.758-07:00Laurel, you show so beautifully that it doesn'...Laurel, you show so beautifully that it doesn't matter how much (productive) time we are given, only what we make of it. With such limited energy, you accomplish more than many others in a long, healthy life. You are giving of yourself, even if it costs you so much. I hope with all my heart that one day something will be given back to you: The one thing that you long for the most.<br /><br />Thank you for being such an inspiration and a wonderful human being to share a planet with :)<br /><br />NinaNinahttps://www.blogger.com/profile/12758454252683265564noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-36777655882060475742011-10-21T05:52:30.065-07:002011-10-21T05:52:30.065-07:00Of course, thank you very much Laurel.
I'm wo...Of course, thank you very much Laurel.<br /><br />I'm wondering .. what is the purpose of these testimonies to the CFSAC? Perhaps I'll include a testimony one day.zachttps://www.blogger.com/profile/15189027321961226572noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-17052871517640291662011-10-20T20:52:49.051-07:002011-10-20T20:52:49.051-07:00Fantastic testimony Laurel. Thank you and everyone...Fantastic testimony Laurel. Thank you and everyone involved for sharing your stories. Thank you for keeping the fact of how severe this disease is for too many of us as part of the picture. And thank you for your succinct summary of what is needed. I will share this.leelaplaynoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-34857422362632752862011-10-20T20:19:15.469-07:002011-10-20T20:19:15.469-07:00Bravo, Laurel. You are an inspiration to all of u...Bravo, Laurel. You are an inspiration to all of us who have plumbed the depths of this illness -- to see how much you can accomplish from bed.Peggyhttps://www.blogger.com/profile/01076379368835293822noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-20815694186786693332011-10-20T19:51:41.417-07:002011-10-20T19:51:41.417-07:00Well done, Laurel! I know this must have been ver...Well done, Laurel! I know this must have been very difficult for you to write and compile. Yet you did it and are providing a voice for all who are severely affected by this disease! Brava!Liz Willowhttps://www.blogger.com/profile/11224204717888883351noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-87970051728847214822011-10-20T18:20:01.938-07:002011-10-20T18:20:01.938-07:00Beautifully done, Laurel. Thank you.Beautifully done, Laurel. Thank you.Wilhelminahttps://www.blogger.com/profile/06849178095683413414noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-60511604058343636062011-10-20T17:59:41.561-07:002011-10-20T17:59:41.561-07:00Another wonderful achievement! Thanks, Laurel, and...Another wonderful achievement! Thanks, Laurel, and thanks to all others who told their stories. You may be hidden behind closed doors but you're bringing this illness out of the closet through your testimonies.moigohttps://www.blogger.com/profile/02946269638167149052noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-45885701972515175732011-10-20T14:10:41.473-07:002011-10-20T14:10:41.473-07:00Thank you so much Laurel and all other patients wh...Thank you so much Laurel and all other patients who contributed to this years' testimony. How many more testimony will you need to write before they hear? I want to hope we are getting there slowly but firmly. Take care....https://www.blogger.com/profile/05386391067359960974noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-637896458442713212011-10-20T12:52:52.047-07:002011-10-20T12:52:52.047-07:00Fantastic testimony, Laurel! Thank you! And than...Fantastic testimony, Laurel! Thank you! And thanks to everyone who shared their stories. :) <br /><br />It's high time for the severely ill to become the public face of this disease!Rebeccanoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-70171278005034222102011-10-20T08:39:04.155-07:002011-10-20T08:39:04.155-07:00Thank you thank you thank you THANK YOU.
It is sh...Thank you thank you thank you THANK YOU.<br /><br />It is shameful how many lives are being lost to this illness and what little is being done. Thanks to all who contributed these powerful stories. I hope our government and medical community finally listen. And DO something.Bedridden with MEnoreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-30359314289179513132011-10-19T23:57:47.136-07:002011-10-19T23:57:47.136-07:00Beautifully done, short and to the point. Thanks L...Beautifully done, short and to the point. Thanks Laurel. <br /><br />Hearing how bad it can get, makes me grateful for what precious health I have. <br /><br />xx Hope you have some good days soon.Xhttps://www.blogger.com/profile/07736967406360912646noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-60157030627391524872011-10-19T22:05:16.785-07:002011-10-19T22:05:16.785-07:00Wonderful letter Laurel! Thank you for speaking o...Wonderful letter Laurel! Thank you for speaking out for those that are unable.Baffledhttps://www.blogger.com/profile/16763003920036754454noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-18806454730710922582011-10-19T17:45:22.170-07:002011-10-19T17:45:22.170-07:00What a shame the photos couldn't be included. ...What a shame the photos couldn't be included. They tell so much of the story. Thanks for your hard work, Laurel. You're an inspiration.Jessrose21https://www.blogger.com/profile/06999510700481299834noreply@blogger.comtag:blogger.com,1999:blog-1168792825239178484.post-55135351388558625872011-10-19T17:01:19.313-07:002011-10-19T17:01:19.313-07:00Hey laurel. I know how much this must have taken o...Hey laurel. I know how much this must have taken out of you, 3months to prepare this and yet you still persevered. I love your strength & determination that despite how long this took you, you are still making sure your voice is heard. We all owe you a huge debt of gratitude. Despite your own battle with your health you continue to raise awareness, you are as always an inspiration.<br />All my love Vikki xAnonymousnoreply@blogger.com