It's been 16 years since I have been able to enter the outside world in any capacity beyond doctor's appointments. I've lived in this house for well over a decade, yet have never once been able to step out through our front door or stand in our yard. In fact, it's been almost 10 years since I've been able to stand at all, or take even a single step outside of my bed or wheelchair.
The campaign is demanding increased funding and program investments commensurate with the disease burden, clinical trials to secure medical treatments for ME and CFS, accurate medical education, and a serious commitment to urgently address the many issues surrounding this much neglected disease. Click here for a full list of the #MillionsMissing campaign goals and demands.
For the millions of patients who are too sick to attend the protest, there are several ways one can participate virtually: by submitting shoes to represent yourself at the protests, taking photos of your shoes by your doorstep or somewhere outdoors (to show you are missing from the outside world), participating on social media (use #MillionsMissing), signing petitions or sending a Congressional Pack to your congressmen/women and state representatives before the protest.
Whether you are a patient, an advocate, a caregiver or a friend of someone with ME, please take a moment out of your day to participate in this important event in whatever way you can. Thank you.