Sunday, April 18, 2010

Everybody Knows About Me

Sometime last year, I stumbled upon a great song about ME/CFS called Everybody Knows About Me by the band Cinder Bridge.  It was written by Susan Wenger (the band's singer and keyboardist) who has a friend with the disease.

I shared the song on the Phoenix Rising Forums, a community message board for those suffering with this illness. One of the members (Teejkay, along with her husband) then came up with the idea to make a video using the song. With Cinder Bridge's permission, they requested photos of people from the forums who have long suffered from ME/CFS, set the photos to fit the music and created the below video for it.

I wanted to share it here because they did such a great job, and because I was so honored to participate. Please share widely in order to help increase awareness. Thanks for watching!


14 comments:

  1. Wow. This is very powerful. Tears are on my face as I identify with what is being said here. I plan to send it on to my family members....
    Thank you for ALL you do Laurel, from your corner of the world, to bring awareness to others with ME/CFS. What a blessing you are to so many!

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  2. Thanks so much for this, Laurel. I'm going to send it to others. And, I voted in your poll (for me, the answer is "incapacitating fatigue").

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  3. Thanks for posting this Laurel. I enjoyed it and found it very moving.

    I hope you're doing ok... x

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  4. Oh wow. I'm in tears. I posted a link to this on Facebook!

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  5. I loved it, Laurel. Had to hit pause to dry my eyes. I wish they had photos of the young people as well, though. I voted, not for myself, but for Jessie.

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  6. Thanks for posting this, Laurel. I also felt honored to participate.

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  7. About half an hour before I watched this I drew, in my sketchbook, a picture of myself with a ton weight on each shoulder. How amazing is that? Really spoke to me, thanks.

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  8. a very poignant song and well documented video. Many thanks for posting Laurel. I do hope you are coming out of your last crash.

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  9. This is FANTASTIC. I'm also going to send it around.

    I hope you are feeling better Laurel!

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  10. Wow! That was awesome! The song says it so well and I loved the photos putting a face to this invisible illness! Thanks for sharing it.

    I think I will highlight it on my youtube channel!

    Thanks Laurel for sharing!

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  11. I was on my way to crying all day land watching this!! Very good & very emotional. Thanks for sharing. I have put ot on my new ME blog x x

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  12. Laurel--Moving, goosebumps on the arms, tears lined in the ducts...video. It powerful, sad, affirming, comforting, did I say sad?... to see all of "us"...living this...looking out our windows...blanket, pillows, tired eyes...STEADFAST spirits.

    Thank you for sharing this. It was a beautiful experience. Kerry (twenty years).

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  13. There are some really good lyrics in this song. I knew it was being made but was to shy to submit my picture :) Thanks for posting the finished product.

    I like the new look of your blog. The ME/CFS fact page is really good. When I get around to it I want to link to it on my blog. Thanks so much for your comment there.

    Alison

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  14. Thank You Laurel...I KNOW also about the HARD days in between..after my 23 years so far..
    I have your bog on my blogroll ;)
    http://standup2me.blogspot.com
    Please BE ♥ AWAP *Gentle Hugs*

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