The below is a PrimeTime Live news story on ME/CFS from 1996. It covers the history of the original outbreaks in the U.S., as well as the complete lack of a response from the CDC. It is a must-see.
I think what struck me most about the segment was the fact that, though the story aired 14 years ago, virtually nothing has changed since that time. For decades now, the CDC has continuously belittled and essentially ignored this very serious and widespread disease. Meanwhile, millions of those stricken with ME/CFS have continued to suffer and watch their lives slip away, and millions more worldwide have become newly diagnosed. Nearly 30 years since the original outbreak, there are still no viable treatments, very little funding, and a serious lack of answers. How far would we be now in research and treatment had the Centers for Disease Control simply done their job at the onset?
Primetime from Barborka on Vimeo.
You can also see the segment on youtube by clicking the link below:
The CDC and CFS
On a more personal note, it's been a rough month for me with another frustrating crash, and all the subsequent disappointments that coincide with any setback. Things seem a tiny bit better in the last few days, though, and that gives me some hope. Fingers crossed some positive changes are coming soon!